I joined the CML club on 19/7/18.
In hindsight I did have some symptoms prior to diagnosis but I had reasonable, or so I thought, explanations for all of them.
As I also have Post Traumatic Stress Disorder, fatigue has been an issue for several years and I had attributed my increased fatigue to recent stress.
Decreased cardio ability I decided was age related (46) and organised an extra gym session every week.
Bone pain in my neck, mid back and shoulder was first because I needed a new pillow, then it was probably a strain from boxing class.
Actually looking back I was pretty good at coming up with explanations that allowed me to avoid the Drs, hardly surprising seeing as I was always back and forth for compensation requirements due to the PTSD.
I ended up at the Drs for a rash on my face, and was actually thinking I could have Lupus as it was very similar to the butterfly rash associated with Lupus.
Dr did my annual bloods a month early and rang the next day, next was a trip to the haematologist, more bloods and a diagnosis of CML two days later, started Sprycel 100mg same day.
My initial blood results because we love numbers WCC: 34,300, Meta's 8%, Myelo's 11%, ProMyelo's 2%, Blasts 1%, NRBC 1:100.
No spleen enlargement.
No Bone Marrow testing required.
Initial BCR-ABL: 110%, 11 days after treatment started it had dropped to 64% a great result I think.
Typical side effects nausea, headaches, constipation, which do seem to be slowly decreasing over time, fatigue and bone pain are still the hardest to manage.
I have bloods taken again on Monday which will be about the 5.5 week treatment mark. Will be interested to see how all the other blood levels are travelling as I seem to have bruises appearing from nowhere at the moment.
Interesting to note that when I looked at my previous years blood test results, while everything was still in 'normal ranges' it was all actually double my usual normal from previous years and at the very top of the ranges considered normal. There was also the first appearance of Myelo's, only 2% but probably worthy of a repeat test after three months, not that it matters now.
I've been reading a lot about CML and feel pretty positive about it all, will be asking to lower the Sprycel dose when I see them next week as it seems to work just as well on a lower dose for most people with potentially less side effects from what I have read.
It's also nice to come to forums like this where you read about people being undetectable for years